Thursday, July 18, 2019

me before you, 14.1

me before you, 14

14


May was a strange month. The newspapers and television were full of headlines
about what they termed ‘the right to die 5 . A woman suffering from a
degenerative disease had asked that the law be clarified to protect her husband,
should he accompany her to Dignitas when her suffering became too much. A
young football player had committed suicide after persuading his parents to take
him there. The police were involved. There was to be a debate in the House of
Lords.

I watched the news reports and listened to the legal arguments from pro-lifers
and esteemed moral philosophers, and didn’t quite know where I stood on any of
it. It all seemed weirdly unrelated to Will.

We, in the meantime, had gradually been increasing Will’s outings - and the
distance that he was prepared to travel. We had been to the theatre, down the
road to see the morris dancers (Will kept a straight face at their bells and
hankies, but he had gone slightly pink with the effort), driven one evening to an
open-air concert at a nearby stately home (more his thing than mine), and once
to the multiplex where, due to inadequate research on my part, we ended up
watching a film about a girl with a terminal illness.

But I knew he saw the headlines too. He had begun using the computer more
since we got the new software, and he had worked out how to move a mouse by
dragging his thumb across a trackpad. This laborious exercise enabled him to
read the day’s newspapers online. I brought him in a cup of tea one morning to
find him reading about the young football player - a detailed feature about the
steps he had gone through to bring about his own death. He blanked the screen
when he realized I was behind him. That small action left me with a lump
somewhere high in my chest that took a full half-hour to go away.



I looked up the same piece at the library. I had begun to read newspapers. I
had worked out which of their arguments tended to go deeper - that information
wasn’t always at its most useful boiled down to stark, skeletal facts.

The football player’s parents had been savaged by the tabloid newspapers.
How Could They Let Him Die? screamed the headlines. I couldn’t help but feel
the same way. Leo Mclnerney was twenty-four. He had lived with his injury for
almost three years, so not much longer than Will. Surely he was too young to
decide that there was nothing left to live for? And then I read what Will had read
- not an opinion piece, but a carefully researched feature about what had actually
taken place in this young man’s life. The writer seemed to have had access to his
parents.

Leo, they said, had played football since he was three years old. His whole life
was football. He had been injured in what they termed a ‘million to one’ accident
when a tackle went wrong. They had tried everything to encourage him, to give
him a sense that his life would still hold value. But he had retreated into
depression. He was an athlete not just without athleticism, but without even the
ability to move or, on occasion, breathe without assistance. He gleaned no
pleasure from anything. His life was painful, disrupted by infection, and
dependent on the constant ministrations of others. He missed his friends, but
refused to see them. He told his girlfriend he wouldn’t see her. He told his
parents daily that he didn’t want to live. He told them that watching other people
live even half the life he had planned for himself was unbearable, a kind of
torture.

He had tried to commit suicide twice by starving himself until hospitalized,
and when returned home had begged his parents to smother him in his sleep.
When I read that, I sat in the library and stuck the balls of my hands in my eyes
until I could breathe without sobbing.

Dad lost his job. He was pretty brave about it. He came home that afternoon, got
changed into a shirt and tie and headed back into town on the next bus, to
register at the Job Centre.

He had already decided, he told Mum, that he would apply for anything,
despite being a skilled craftsman with years of experience. ‘I don’t think we can
afford to be picky at the moment,’ he said, ignoring Mum’s protestations.



But if I had found it hard to get employment, prospects for a 55-year-old man
who had only ever held one job were harder. He couldn’t even get a job as a
warehouseman or a security guard, he said, despairingly, as he returned home
from another round of interviews. They would take some unreliable snot-nosed
seventeen-year-old because the government would make up their wages, but they
wouldn’t take a mature man with a proven work record. After a fortnight of
rejections, he and Mum admitted they would have to apply for benefits, just to
tide them over, and spent their evenings poring over incomprehensible, fifty-
page forms which asked how many people used their washing machine, and
when was the last time they had left the country (Dad thought it might have been
1988). I put Will’s birthday money into the cash tin in the kitchen cupboard. I
thought it might make them feel better to know they had a little security.

When I woke up in the morning, it had been pushed back under my door in an
envelope.

The tourists came, and the town began to fill. Mr Traynor was around less and
less now; his hours lengthened as the visitor numbers to the castle grew. I saw
him in town one Thursday afternoon, when I walked home via the dry cleaner’s.
That wouldn’t have been unusual in itself, except for the fact he had his arm
around a red-haired woman who clearly wasn’t Mrs Traynor. When he saw me
he dropped her like a hot potato.

I turned away, pretending to peer into a shop window, unsure if I wanted him
to know that I had seen them, and tried very hard not to think about it again.

On the Friday after my dad lost his job, Will received an invitation - a
wedding invitation from Alicia and Rupert. Well, strictly speaking, the invitation
came from Colonel and Mrs Timothy Dewar, Alicia’s parents, inviting Will to
celebrate their daughter’s marriage to Rupert Freshwell. It arrived in a heavy
parchment envelope with a schedule of celebrations, and a fat, folded list of
things that people could buy them from stores I had never even heard of.

‘She’s got some nerve,’ I observed, studying the gilt lettering, the gold-edged
piece of thick card. ‘Want me to throw it?’

‘Whatever you want.’ Will’s whole body was a study in determined
indifference.

I stared at the list. ‘What the hell is a couscoussier anyway?’



Perhaps it was something to do with the speed with which he turned away and
began busying himself with his computer keyboard. Perhaps it was his tone of
voice. But for some reason I didn’t throw it away. I put it carefully into his folder
in the kitchen.

Will gave me another book of short stories, one that he’d ordered from
Amazon, and a copy of The Red Queen. I knew it wasn’t going to be my sort of
book at all. ‘It hasn’t even got a story,’ I said, after studying the back cover.

‘So?’ Will replied. ‘Challenge yourself a bit.’

I tried - not because I really had an appetite for genetics - but because I
couldn’t bear the thought that Will would go on and on at me if I didn’t. He was
like that now. He was actually a bit of a bully. And, really annoyingly, he would
quiz me on how much I had read of something, just to make sure I really had.

‘You’re not my teacher,’ I would grumble.

‘Thank God,’ he would reply, with feeling.

This book - which was actually surprisingly readable - was all about a kind of
battle for survival. It claimed that women didn’t pick men because they loved
them at all. It said that the female of the species would always go for the
strongest male, in order to give her offspring the best chance. She couldn’t help
herself. It was just the way nature was.

I didn’t agree with this. And I didn’t like the argument. There was an
uncomfortable undercurrent to what he was trying to persuade me of. Will was
physically weak, damaged, in this author’s eyes. That made him a biological
irrelevance. It would have made his life worthless.

He had been going on and on about this for the best part of an afternoon when
I butted in. ‘There’s one thing this Matt Ridley bloke hasn’t factored in,’ I said.

Will looked up from his computer screen. ‘Oh yes?’

‘What if the genetically superior male is actually a bit of a dickhead?’

On the third Saturday of May, Treena and Thomas came home. My mother was
out of the door and up the garden path before they had made it halfway down the
street. Thomas, she swore, clutching him to her, had grown several inches in the
time they had been away. He had changed, was so grown-up, looked so much the
little man. Treena had cut off her hair and looked oddly sophisticated. She was



wearing a jacket I hadn’t seen before, and strappy sandals. I found myself
wondering, meanly, where she had found the money.

‘So how is it?’ I asked, while Mum walked Thomas around the garden,
showing him the frogs in the tiny pond. Dad was watching football with
Granddad, exclaiming in mild frustration at another supposed missed
opportunity.

‘Great. Really good. I mean, it’s hard not having any help with Thomas, and it
did take him a while to settle in at the creche.’ She leant forwards. ‘Although you
mustn’t tell Mum - I told her he was fine.’

‘But you like the course.’

Treena’s face broke out into a smile. ‘It’s the best. I can’t tell you, Lou, the joy
of just using my brain again. I feel like there’s been this big chunk of me missing
for ages ... and it’s like I’ve found it again. Does that sound wanky?’

I shook my head. I was actually glad for her. I wanted to tell her about the
library, and the computers, and what I had done for Will. But I thought this
should probably be her moment. We sat on the foldaway chairs, under the
tattered sunshade, and sipped at our mugs of tea. Her fingers, I noticed, were all
the right colours.

‘She misses you,’ I said.

‘We’ll be back most weekends from now on. I just needed ... Lou, it wasn’t
just about settling Thomas in. I just needed a bit of time to be away from it all. I
just wanted time to be a different person.’

She looked a bit like a different person. It was weird. Just a few weeks away
from home could rub the familiarity right off someone. I felt like she was on the
path to being someone I wasn’t quite sure of. I felt, weirdly, as if I were being
left behind.

‘Mum told me your disabled bloke came to dinner.’

‘He’s not my disabled bloke. His name’s Will.’

‘Sorry. Will. So it’s going well, then, the old anti-bucket list?’

‘So-so. Some trips have been more successful than others.’ I told her about the
horse racing disaster, and the unexpected triumph of the violin concert. I told her
about our picnics, and she laughed when I told her about my birthday dinner.

‘Do you think ... ?’ I could see her working out the best way to put it. ‘Do you
think you’ll win?’



Like it was some kind of contest.

I pulled a tendril from the honeysuckle and began picking off its leaves. 'I
don’t know. I think I’m going to need to up my game.’ I told her what Mrs
Traynor had said to me about going abroad.

‘I can’t believe you went to a violin concert, though. You, of all people!’

‘I liked it.’

She raised an eyebrow.

‘No. Really, I did. It was ... emotional.’

She looked at me carefully. ‘Mum says he’s really nice.’

‘He is really nice.’

‘And handsome.’

‘A spinal injury doesn’t mean you turn into Quasimodo.’ Please don’t say
anything about it being a tragic waste, I told her silently.

But perhaps my sister was smarter than that. ‘Anyway. She was definitely
surprised. I think she was prepared for Quasimodo.’

‘That’s the problem, Treen,’ I said, and threw the rest of my tea into the flower
bed. ‘People always are.’

Mum was cheerful over supper that night. She had cooked lasagne, Treena’s
favourite, and Thomas was allowed to stay up as a treat. We ate and talked and
laughed and talked about safe things, like the football team, and my job, and
what Treena’s fellow students were like. Mum must have asked Treena a
hundred times if she was sure she was managing okay on her own, whether there
was anything she needed for Thomas - as if they had anything spare they could
have given her. I was glad I had warned Treena about how broke they were. She
said no, gracefully and with conviction. It was only afterwards I thought to ask if
it was the truth.

That night I was woken at midnight by the sound of crying. It was Thomas, in
the box room. I could hear Treena trying to comfort him, to reassure him, the
sound of the light going on and off, a bed being rearranged. I lay in the dark,
watching the sodium light filter through my blinds on to my newly painted
ceiling, and waited for it to stop. But the same thin wail began again at two. This
time, I heard Mum padding across the hallway, and murmured conversation.
Then, finally, Thomas was silent again.



At four I woke to the sound of my door creaking open. I blinked groggily,
turning towards the light. Thomas stood silhouetted against the doorway, his
oversized pyjamas loose around his legs, his comfort blanket half spooled on the
floor. I couldn’t see his face, but he stood there uncertainly, as if unsure what to
do next.

‘Come here, Thomas,’ I whispered. As he padded towards me, I could see he
was still half asleep. His steps were halting, his thumb thrust into his mouth, his
treasured blanket clutched to his side. I held the duvet open and he climbed into
bed beside me, his tufty head burrowing into the other pillow, and curled up into
a foetal ball. I pulled the duvet over him and lay there, gazing at him, marvelling
at the certainty and immediacy of his sleep.

‘Night, night, sweetheart,’ I whispered, and kissed his forehead, and a fat little
hand crept out and took a chunk of my T-shirt in its grasp, as if to reassure itself
that I couldn’t move away.

‘What was the best place you’ve ever visited?’

We were sitting in the shelter, waiting for a sudden squall to stop so that we
could walk around the rear gardens of the castle. Will didn’t like going to the
main area - too many people to gawp at him. But the vegetable gardens were
one of its hidden treasures, visited by few. Its secluded orchards and fruit
gardens were separated by honeyed pea-shingle paths that Will’s chair could
negotiate quite happily.

‘In terms of what? And what’s that?’

I poured some soup from a flask and held it up to his lips. ‘Tomato.’

‘Okay. Jesus, that’s hot. Give me a minute.’ He squinted into the distance. ‘I
climbed Mount Kilimanjaro when I hit thirty. That was pretty incredible.’

‘How high?’

‘A little over nineteen thousand feet to Uhuru Peak. That said, I pretty much
crawled the last thousand or so. The altitude hits you pretty hard.’

‘Was it cold?’

‘No ... ’he smiled at me. ‘It’s not like Everest. Not the time of year that I
went, anyway.’ He gazed off into the distance, briefly lost in his remembrance.

‘It was beautiful. The roof of Africa, they call it. When you’re up there, it’s like
you can actually see to the end of the world.’

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